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pediatric rsd

Teenager with CRPS Fights Back and Wins with Calmare Therapy

December 8, 2017

Here in New Jersey, we have treated many children and teens battling chronic pain, particularly CRPS, over the years.

Prior to discovering scrambler therapy, the majority of these children had been prescribed prescription painkillers, including opioids, and subjected to painful and invasive treatments that failed to lessen or resolve their pain.

We recently treated 15-year-old Maiya, months after she was diagnosed with the condition after she was hit directly in the face and neck with a basketball.

Her family wisely moved quickly to find a drug-free solution to treat her pain, which was concentrated in her upper extremity region, after the painkillers she was prescribed only left her feeling tired and confused.

Learn more about treating pediatric chronic pain without drugs or invasive procedures.

She tells her compelling story below, followed by Calmare Therapy NJ’s clinical director, Dr. Michael Cooney, who provides an insightful overview of her case:

Teenager with CRPS Receives an Early Christmas Present After Calmare

December 22, 2016

brycen_2
Brysen is shown with the Calmare MC-5A device leads on his neck, which are transmitting ‘no pain’ messages to his brain via varied algorithms. It is a painless process with no side effects.

Brysen is a 16-year-old from New Jersey. He arrived at our clinic on December 5, 2016, for treatment of CRPS, which he developed following surgery for a closed wrist reduction one year ago. The pain was concentrated in his left leg and arm.

He had previously been prescribed a number of anticonvulsants medications for pain management, which were not successful.

When he arrived at our clinic in New Jersey, his pain level was at a 7/10 which had escalated to as high as a 10/10. He was also prescribed Amitriptyline.

Prior to coming to the Calmare NJ clinic, Brysen had completed an intensive physical therapy regime at the renowned Children’s Hospital of Philadelphia (CHOP).

The teenager underwent 10 daily treatments of scrambler therapy which lasted about 35-minutes each. By treatment number three, he began to realize a pain reduction in both his leg and arm. As the treatments continued, his pain level continued to plummet.

Brysen’s Patient Outcome After Calmare Therapy for Complex Regional Pain Syndrome

Tomorrow he will complete his final treatment, but as of today, he is pain-free.

Additionally, he is no longer taking any pain medication.

He and his family will be leaving shortly for a vacation in Hawaii.

We have a feeling this is going to be a very special Christmas for Brysen and his family.

Merry Christmas!

Are You or a Loved One Battling RSD or CRPS?

Dr. Michael Cooney is known internationally for his success lessening or eliminating severe treatment-resident chronic pain using Calmare scrambler therapy. We are now booking 2017 consultations with the doctor by phone (there is no fee for this consultation).

If you would like to schedule a call with the doctor, first review all the pages of this website to learn more about how scrambler therapy works and how the painless treatments are performed.

Please know the treatment cycle requires you to visit the office for 10 visits over two weeks.

Our Calmare administrative team would be happy to offer recommendations for lodging nearby.

Please complete the eCard below, and we’ll be happy to follow-up with you:

Why Calmare Pain Therapy Treatment is ideal for children and teens with chronic pain

September 1, 2015

By Dr. Michael J. Cooney, Clinical Director, Calmare Therapy NJ

The last thing any parent or caregiver wants to do is subject their child to pain—even if the goal is to help decrease pain.

In addition, no parent I’ve ever met wants to give their child narcotics to combat pain, even for the short-term.

But, if your child is suffering, you’ll do just about anything to help them.

I realized that during the month of August here in our New Jersey Calmare clinic, about 70 percent of the patients we treated for neuropathy using scrambler therapy were under 30 years old.

And about 50 percent of those patients were under age 18.

Why Calmare scrambler therapy is an ideal treatment for pediatric neuropathyGabriel_6.2015

  • FDA-cleared 510(k)-cleared and European CE mark-certified
  • Pain free
  • Non-invasive (no injections, IV’s, outpatient procedures–nothing)
  • Drug-free (no narcotics, nothing over-the-counter).
  • No side effects (the most you may experience is a light humming sensation which we can adapt if your skin is unable to sustain any kind of touch)

How does scrambler therapy work?

Children or teenagers are comfortably connected to the Calmare Pain Therapy Treatment® device via small electrodes (similar to those used in EKG and other medical procedures) placed on the patient’s skin at the pain site/s.

The device then sends a very low current of electrical stimulation through the skin and nerve fibers, which carries a “no pain” signal to the brain, essentially overriding the previous pain signal.

Abby Bluteau getting treatment_2015We recommend the child have books, magazines or handheld entertainment to help pass the time during the treatments (see Abby at left).

In some cases, pain relief has been reported after the first treatment, but each child’s case is unique.

During the 35-minute daily treatments performed over a two-week period, the patient’s pain steadily decreases with the goal of sending the child or teen home without the need for wheelchairs, canes or any supportive devices.

Once the child is back home, after ample rest and care is taken not to “do too much too soon,” many pediatric patients return to school and normal daily activities.

Can you share some pediatric patient Calmare Therapy success stories?

Absolutely!

Kara stompKara

Abby Bluteau_6.2015

Abby

amanda and dr. cooney_7.2012

Amanda

Jamie 2_8.2015Jamie

Gabriel_age11_12.2013Gabriel

LizLiz

Would you like to discuss if Calmare might help your child or teenager?

Care to comment or share this article on Twitter? 

Calmare Therapy warrior Jamie checks in since his 2012 treatment

August 28, 2015

Calmare scrambler therapy is not a “cure” for RSD or CRPS, unfortunately.

But in Jamie 2_8.2015the best possible scenario for patients who undergo the 10-treatment series, it can put the severe pain and physical symptoms:

  • allodynia
  • severe temperature fluctuations
  • sensitivity to touch
  • debilitating pain and muscle weakness

into a remission state and restore the patient’s quality of life.

As you may know from our patient stories, we are treating many children, teens and young adults with this condition, many successfully.

Some patients, like Jamie, who we treated for shoulder pain three years ago, have never needed  additional scrambler therapy “booster treatments” but some patients do need them periodically. From my experience, most patients who require boosters need fewer as time goes on and they can sustain a pain recurrence for longer periods of time.

Click here to learn more about Calmare Therapy Booster Treatments

Jamie’s mother Joan was kind enough to check in last week and shared the following:

Jamie_8.2015“Here is a blast from the past. This is Joan.  In Jan/Feb 2012 you fixed my son’s shoulder pain.  Jamie is doing great shoulder wise. Almost 6 ft. tall and has his learner’s permit!

Here he is out in the back yard with a friend throwing a Frisbee so I took a few photos for you. Left arm/shoulder doing just fine as you can see!

Thanks again. I do not even want to think about what life would have been like these last 3 years if you hadn’t helped him.”

It’s hard to describe what these messages mean to all of us from former patients. For children and young adults who are riddled with debilitating neuropathy is particularly difficult.

But when we receive these kind of messages? It makes all the daily challenges more than worth it.

Thank you for reaching out Joan. Great to hear from you. And to Jamie–be careful on the roads!

Abby charts her post-Calmare treatment on a Facebook page

Abby Bluteau_6.2015Earlier this summer, 13-year-old Abby and her mother were here to treat her severe CRPS. She arrived in a wheelchair with pain on her whole left side. The family was worried Abby would soon have full-body RSD.

Before her treatment began, her mother Danielle asked what she Abby Bluteau getting treatment_2015dreamed of doing if Calmare scrambler therapy was successful.

Abby responded she’s like to run and jump on the beach in Maine.

Well this week, that dream became a reality and her mother shared it on our Facebook timeline this morning.

For parents or teens battling CRPS / RSD, you may wish to read Abby’s chronicle of her journey before, during and after therapy with our clinical director, Dr. Michael Cooney, here in New Jersey.

facebook-iconA Teenager’s Journey with CRPS shows a brief video of Abby last week.  Running on the beach. In Maine.

Boy with RND looks forward to his first pain-free Christmas in three years

Gabriel_age11_12.2013(Update: 1/2014: Gabriel’s mother called us this morning to say her family is elated that their son continues to be pain-free and he is finally returning to public school today, without crutches…)

Part of being a child is taking your share of hits, scrapes, bumps and bruises. But some children who sustain these routine injuries are faced with the unexpected onset of chronic pain that can take away the simple joy of childhood. This chronic condition, reflex neurovascular dystrophy (RND), is in the same disease family as RSD / CRPS and fibromyalgia.

The root of all of these diseases stems from damaged nerves (most commonly as the result of an injury or surgery) which amplifies the pain signal to the brain. The resulting pain can be excruciating and especially heartbreaking when this pain is suffered by a child.  RND is more common than you might think.

Last year, we profiled a high school student, Katie, a smart and athletic teenager with RND.  She responded beautifully to scrambler therapy and while we miss her, she left our office pain-free and has never needed to return for booster treatments (read about her post-treatment update letter here:  https://calmaretherapynj.com/2013/02/14/mother-of-teen-with-fibromyalgia-shares-calmare-experience/).

Gabriel’s young life is put on hold by pain

Two weeks ago, 11-year-old Gabriel from New Jersey came in with RND in his right leg after sustaining a soccer injury in 2010. He described his pain as a 9/10 upon arrival. Over the past few years, he underwent the standard course of treatments for neuropathy with a battery of doctors including his pediatrician, orthopedist, rheumatologist and pain management specialists. He took painkilling-medication and endured unpleasant injections to treat severe pain.

Due to his extreme ongoing pain and skin sensitivity, Gabriel had to drop out of soccer and karate and be home-schooled. He suffered from chronic fatigue and weight gain, as a result of the painkilling medications.

I began treating him with daily Calmare Therapy treatments of about an hour a day; starting with the second treatment, and Gabriel’s pain began to diminish and I saw a smile for the first time.

An optimal outcome with a treatment that has no pain or side effects

After completing the standard two-week treatment protocol, Gabriel was pain-free for the first time in three years.  He has begun to sleep through the night again. By the eighth treatment, he was able to put his favorite sneakers on for the first time in months.

Just in time for Christmas, this terrific young man’s Calmare treatment is complete.  He and his elated family are moving forward with their lives, starting with celebrating the holidays in a big way this year.

Thank you to Gabriel and his parents for having the faith and fortitude to keep looking for a drug-free and non-invasive  treatment to overcome chronic RND pain. You positive outcome has been an early Christmas present for me, indeed.

Unrelenting parents and a devoted boyfriend help this Florida teenager finally overcome her RSD pain

Dayna Payne and Dr. Cooney_10.2013It may sound odd to say this, but RSD sufferer Dayna Payne, a kind and intelligent 16-year-old, is a fortunate young woman. In late 2011, after surgery as a result of a fractured right foot, Dayna was diagnosed with reflex sympathetic dystrophy (RSD). Her constant symptoms included burning pain near the incision site, extreme aversion to touch and non-stop “pulsing pain” in the region. Over time, this chronic pain began to spread up through her back, into both wrists, and down to her left knee.

High school interrupted

During her freshman year of high school, Dayna was forced to withdraw from school due to the severity of her condition. All the while, her indefatigable parents aggressively sought out the latest treatment solutions to help their daughter (Dayna’s mother is a registered nurse and assistant director of nursing in the Emergency Department at a local hospital).

“I was taking several pain medications every day ─ Lyrica, Lortab, Ultram, and Nucynta; I also had uncomfortable injections and infusions; nerve blocks and finally underwent the trial for a spinal cord stimulator,” Dayna explains.

Dan Payne, Dayna’s father, says his daughter was not deemed an appropriate candidate for the spinal cord stimulator.  “I was really upset after that bad news,” Dan recalls. “Little did I know, it was the best thing that could have happened.”

Resilient parents + caring boyfriend = A new RSD treatment discovery

Dayna’s devoted boyfriend, Skyler, researched on the Internet about treatments for RSD and discovered a YouTube video of Amanda Davidson from Indiana, a girl about Dayna’s age, who told her story about overcoming severe RSD after undergoing Calmare scrambler therapy. Dr. Michael Cooney of Calmare Therapy NJ, who specializes in treating RSD and CRPS patients, was Amanda’s doctor. Skyler presented his findings to Dayna and her parents, who researched Calmare’s success battling RSD even further.

“I’ll be honest, after all the disappointments we had been through, we nonetheless went up to New Jersey to try the Calmare, but felt pretty skeptical about any chance of it helping our daughter,” Dan says.

While undergoing treatment at Calmare Therapy NJ, Dayna met another RSD patient from Ohio who was receiving Calmare booster treatments. “She told me that this treatment doesn’t hurt and absolutely works,” Dayna says. After the first week of daily 45-minute treatments, Dayna’s pain decreased from a 10/10 to a 3/10. By the end of week two, she was nearly pain-free for a period of almost 24 hours straight. “We decided to do one extra treatment so I could go home with 0 pain, which I did.”

Adjusting to a life with less pain

The Payne family is slowly trying to get used to Dayna’s improved health. Everyone says one of the most meaningful benefits of Calmare’s success is that Dayna can be hugged by her family for the first time in more than two years. “Just being able to do this means the world to me,” Dayna says.

Going forward, the high school junior, now being homeschooled, hopes to return to school and graduate next year with her class. She is also looking forward to attending the prom this year with her boyfriend. But, for now, she still has to remind herself that she can do things in every day life she has not been able to do, such as climbing stairs and gentle running. “After all these years in pain, my brain still keeps telling me to ‘be careful’ before I do anything,” Dayna says.

Dr. Cooney weighs in

Dr. Cooney says that he’s thrilled with Dayna’s outcome but urges her not to get too crazy at first. “Many Calmare patients are understandably eager to jump back into a ‘regular life’ after living on the sidelines for so long,” Dr. Cooney explains. “But initially, take it slow and easy.” The doctor says physically debilitated patients need to ease muscles, which haven’t been used because of the pain factor, back into regular use. “Many patients also need extra sleep after treatment, which is completely normal.”

Dayna offers a few words of advice for others considering Calmare Therapy. “When I spoke with Amanda, she gave me some great advice that helped me so much ─ don’t give up; stick with the therapy. As you continue with the treatments, the time your pain is lessened will get longer and longer until it just finally goes away, which is an amazing feeling!”

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