Category Archives: treatment for fibromyalgia pain

Our war on RSD continues (thumbs up)

April 30, 2013

We’re delighted to report not one –but two–positive outcomes in the works with two RSD patients who began treatment last week. They’ve given us permission to share their stories as a vehicle for helping others who may read this (thank you both!).

Let’s begin with Deena from Pennsylvania –

Deena_PA_4.2013

Deena is shown here with the Calmare machine (April 2013).

In 2008, Deena fell on a wet tile floor and experienced hyperextention of the knee with a grade 2 tear of the medial collateral ligament (MCL). A year after her injury, she was diagnosed with reflex sympathetic dystrophy (RSD).  Treatment efforts for the past three years have consisted of physical therapy, nerve blocks and painkilling drugs such as Gabapentin and Tramadol, with no positive results.

Unable to walk without pain on the right side from the buttock to her foot, Deena has not been able to work or be fully engaged in day-to-day life.

Living in central PA, Deena felt isolated with her chronic pain, but through Facebook, she discovered other people who were also living with RSD.  Over time, she read about several positive experiences with Calmare scrambler therapy, she called the national headquarters for more information she was referred to Dr. Michael Cooney in New Jersey, who has treated many RSD / CRPS/ Fibromyalgia patients.

When she arrived at Calmare Therapy NJ last week, her lower extremity pain level was severe, 10 / 10. After five treatments, her pain has been reduced to a three  at night only at the original pain site (knee). The rest of her lower extremity pain is gone. Her mobility is vastly improved — she has no more limping or pain when walking and has overcome the allodynia (pain when touched).

Deena is finishing up her therapy this week and we look forward to her video depicting her experience with Calmare. Deena–it’s been a pleasure having you here in New Jersey and we are excited to hear about how your life is about to change once you return to PA. Stay in touch!

The importance of your Calmare Therapy provider’s expertise

April 12, 2013

By Dr. Michael J. Cooney, Director, Calmare Therapy NJ

Calmare Certified Location LogoI’ve received several patient queries lately about the expertise of the healthcare professional who is actually administering Calmare Therapy.  I’d like to touch on the importance of this question today─

Calmare is a “provider dependent” therapy

The scrambler therapy is performed by a “provider,” the specially-trained clinician who places each of the leads on the patient, sets the voltage, monitors response minute-by-minute and day-by-day, and makes ongoing adjustments based upon the patient’s response. In my practice, I am the provider, 100 percent of the time, from start to finish ─ no exceptions. The administering healthcare professional must have extensive expertisetraining and understanding to accurately diagnose the precise location of the pain site/s. This can be easier said than done.

Why? Because the placement of the leads (patches) which are attached to each of the algorithms must be precisely placed in order to alleviate pain. If these leads are placed in the wrong area, this lessens the overall capability of the Calmare MC-5A technology to optimally perform its job. I have served as a Trainer for the treatment for some new doctors introducing Calmare, and it is a responsibility I take very seriously.

What to look for in your Calmare provider

The most experienced Calmare Therapy providers have received a careful review and on-site examination by the company’s administrators who may or may not designate the top providers as Calmare Certified. I strongly encourage you to seek out these providers for your therapy. Secondly, ask the provider you are considering how many patients they have treated with your specific chronic pain condition ─ back and neck pain, post surgical pain, RSD / CRPS / fibromyalgia, pain after chemotherapy, diabetic neuropathy, etc.

Your Calmare technology will be most successful when your chosen provider has advanced expertise in the placement of each lead. In my opinion, this vitally important task should only be administered by a healthcare professional specifically trained in the diagnosis and treatment of several types of advanced neuropathy.

Calmare patient Terry Whitmyer shares his progress fighting RSD

Image(You may recall, I wrote about one of our recent patients with RSD as a result of two surgical procedures performed during one operation. We had a chat with Mr. Whitmyer earlier this week and were delighted when he offered to share this overview of his medical challenges and firsthand experience with Calmare Therapy. He has kindly permitted us to repost it here. Terry has a remarkable understanding of neuropathy and the very latest treatment alternatives. Please enjoy Terry’s story):

“I am a 70-year-old fit and active senior who elected to have my left shoulder repaired via arthroscopic surgery as well as my left hand’s Dupuytren’s Contracture at the same time on November 17th, 2012. By December, I was experiencing a lot more pain than what would appear to be normal for these surgical procedures. On January 2, 2013, my orthopedic surgeon diagnosed my pain symptoms as being caused by RSD. He prescribed Gabapentin and continuation of physical therapy.
 
Having a diagnosis for my pain, I started to study RSD/CRPS online and realized I was up against a serious, chronic, life-altering and painful syndrome. Gabapentin was allowing me to get some sleep at night, but really not very much, and it seemed to have too many unpleasant side effects to want to take it around the clock. Besides, I was concerned that it’s anti-convulsive nerve-blocking effect may also inhibit my central nervous system from re mapping my nerves back to a normal connectivity. However, research does not appear to support that assumption. Regardless, in late January, I learned about Calmare Scrambler Therapy and decided it was worth trying to get me off Gabapentin and better allow my body to take advantage of the physical therapy.
 
I went to Dr. Cooney, Rutherford Allied Medical Group, on February 1st for a trial session and experienced immediate pain relief. After nine more sessions, I appeared to have my pain problem under control. Within a few more weeks, I realized my efforts at physical therapy were also having a positive effect. Soon, I could turn a door knob with my left hand.
 
I am steadily making progress in my strengthening exercises at the local gym. I did return to Calmare NJ for a booster session on 3/29 as some of my arm and hand pains seemed to be returning. But now, a week later, I am thinking with my continuing physical improvements, I will be able to get this CRPS into total remission by the end of this summer.
 
Calmare Scrambler Therapy has played a significant role in expediting my recovery.
 
Thank you Dr. Cooney.
 
Terry Whitmyer

Calmare Scrambler Therapy vs. Full Body RSD

March 23, 2013

woman in shadow anonymousMelissa, age 28, arrived here from south Jersey for Calmare treatment on Wednesday after suffering from full body RSD for 15 long years. The original injury began in her left ankle after a fall, followed by a second injury as the result of a car accident.  Over the years, her RSD slowly spread until it encompassed her entire body.

She and her husband aggressively sought new pain treatments for RSD ─ a laundry list of drugs, spinal cord stimulators (SCS),  multiple nerve blocks, etc.  Melissa was searching on the Internet for drug-free treatments and discovered one of our patient stories on YouTube. She contacted us and we talked at length about her medical history, treatment efforts and expectations. I shared my experience treating many people living with RSD / CRPS/ RND / Fibromyalgia using Calmare, and we mutually decided to begin treatment.

My strategy is to initiate treatment exclusively on her original pain site, the left ankle. After the first treatment, her Mother became emotional saying the early results were the first positive treatment outcome she could remember.

After Treatment Day 3 (yesterday), Melissa described her pain as “sore” but far from the 8 -10 level reported a few days ago. She noted both arms are receding in pain.

Time will tell. Her case is very advanced and has been in place for more than a decade. As I’ve said before, the longer the period of sustained neuropathy, the longer the treatment process can be. Have I seen exceptions to this guideline? Yes, absolutely. But this is typical.

Melissa’s early positive early signs are encouraging to me.  Her mother is staying here in town with her for week one and her husband will come up for week two. With her permission, I’ll keep you updated on her progress.

Good weekend to all,

Dr. Cooney

Chronic pain sufferers find valuable support from online chat groups

March 20, 2013

chat roomBy Dr. Michael J. Cooney

A colleague shared this article supporting online chat rooms for people living with chronic pain.  For those of us at Calmare Therapy NJ, this is not news. Many of our patients are enthusiastic users of Facebook groups, Twitter and other sites where people living with neuropathy or specific medical conditions can interact and share support. We often join in relevant discussions as well from a healthcare provider perspective.

The caveat, of course, is when non-medical professionals share healthcare information that is one-side on simply incorrect. We have had more than a few patients contact us with mis-information about Calmare Therapy, in fact.

Nonetheless,  my team and I actively join in on some of these online discussion groups because we can often offer clinical information on scrambler therapy and answer simple questions to help patients determine if this therapy (or another) might help minimize the cause of their pain.

My suggestion? Search for some online support groups and read the posts for a while to see if the tone and quality of information suits your needs. If you choose to jump in and ask a question or share your experience, you can maintain your privacy by posting under a username that protects you.

Nearly all the chronic pain support groups have chat rooms. Here are a few groups that we participate in below. If any of our readers would like to share additional recommendations, please do so!

Here to Help – RSD

Surviving Chronic Pain

DailyStrength.org (sign-up required)

rsdcrpsdoesntownme.com

Dr. Cooney takes your questions live on “RSD and You” today!

rsdnad youI am honored to be a guest on Joseph Aquilino’s popular “RSD and You” BlogTalk Radio program today at 3 p.m. eastern time.  It’s a relaxed program format where Joseph and I talk about Calmare Pain Therapy Treatment (he is also a patient with another doctor) and then we open up the phone lines for caller questions.

The call-in number is (310) 982-4253 and to listen live just click http://www.blogtalkradio.com/joeygiggles/2013/02/15/rsd-and-you-show .

If you’d like to join us on chat during the show, you’ll need to first register for the main site at http://blogtalkradio.com/.

If you have questions about scrambler therapy, please feel free to call in. There’s no need to identify yourself if you prefer not to.  Calmare patients are also encouraged to call and share their stories! See you at 3 pm!

Mother of teen with fibromyalgia shares Calmare experience

Katie Salmon(You may recall last year that Pennsylvania teen Katie Salmon came to us after missing months of school due to pain from fibromyalgia after a sports injury. She responded extremely well after Calmare Therapy last Spring. Katie was here for a few booster treatments for the first time since we saw her last spring. Her mother, Sue, sent us the letter below, which explains why we love to come to work every single day).

February 2013

Hi Dr. Cooney,

We cannot thank you enough for your Calmare Therapy. Last year at this time, our daughter Katie was at a constant level 8 pain ─ curled up in a ball of pain, taking ridiculous amounts of pain meds (that did nothing but prevent her from even finishing a thought). This was no way for anyone to live, let alone a 17-year-old. She missed 70 days of school…

Here we are, 10 months after her Calmare Therapy and she has her life back! Katie’s senior year in high school has been fantastic. She is president of her class, active in our church, attends football games, dances and is captain of her school’s Red Team.

Amazing. She is headed to college next year and looking forward to her future.

Words cannot express our gratitude to you and your staff for giving Katie her life back! Hope you are all doing well. We think of you often.

Sincerely,

Sue Salmon

Insurance coverage for scrambler therapy is on the upswing

When it comes to convincing government and private medical insurance to cover newer medical treatments, it can feel like climbing a mountain. At night. With no shoes. In the pouring rain.

But, we’re happy to begin to see some light at the end of the tunnel. At last, health insurers are recognizing the cost benefit and effectiveness of Calmare’s scrambler therapy in comparison to endless medications, expensive and invasive chronic pain treatments such as Ketamine therapy and spinal chord stimulators (SCS).

 Here is what we know or have been advised to date:

 Worker’s Comp:

The following states are covering scrambler therapy:

New York

Connecticut

Rhode Island

Wyoming

Private Insurance:

*There have been sporadic reimbursements for indications including CIPN, RSD, Herpes and CRPS from the following private health insurers who have approved and paid for at least one patient of treatment for Scrambler Therapy: 

United  

Aetna  

Chartis 

Beacon Mutual  

BCBS UT

Cigna   

Zurich

Liberty Mutual

GHI

BCBS-NV

Anthea

CorVel

Empire BCBS

The Empire Plan 

 *Patients have reported the highest percentage of success when they appeal an initial denial of coverage. 

Additionally, patients living in New York and Wyoming with private insurance have reported the highest percentage of coverage in the U.S., to date.

Without appeals or submittal of claims for coverage, the insurance company’s Medical Directors see no demand from providers for the new technology and therefore have little motivation to establish coverage.

 CPT Code for Scrambler Therapy

The AMA released the new CPT code (0278T) on January 1, 2012.   This code is now used by all Scrambler therapy sites for billing/reimbursement claims.

If you live in a state where Worker’s Comp offers coverage and would like to pursue Calmare Therapy:

1) Schedule a consultation with a certified Calmare provider to determine if your medical condition is appropriate for Calmare Therapy. Bring along your medical records and a history of other chronic pain treatments you have undergone.

2) IF your doctor confirms Calmare is appropriate for your medical condition, contact your Worker’s Comp representative to obtain “pre-certification” before beginning treatment.

There is activity, we are getting there

Slowly but surely, insurers are beginning to see that scrambler therapy is a cost-effective treatment to help people minimize or eliminate chronic pain which is preventing them from working and enjoying the high quality of life they deserve. It’s proven and remarkably inexpensive in comparison to prescription drugs, Ketamine therapy, spinal cord stimulators (SCS) and other invasive and painful treatments.

But patients and their loved ones must put up a fight. What does this mean? According to patients we have spoken with who received reimbursement for Calmare, they did not accept the bevy of “Denial of Coverage” form letters. They wrote their own letters, appealed, appealed and appealed until someone listened.

As a Calmare provider, we will do anything we can to help you win the coverage you deserve. We have staff that interacts with insurance companies and Worker’s Comp personnel 40 hours a week. We are fighting the same battle, right beside you.

 

“What’s the difference between Calmare’s MC5-A technology and a TENS unit?”

By Dr. Michael Cooney

This is one of the most common questions we are asked by patients living with chronic pain. I’d like to share my response, which generally begins with something like, “It is like driving on a one-lane, back-woods road compared to a newly- paved, super highway with 16 lanes…”

But the question is 100 percent valid and requires a detailed explanation. First let’s compare the two devices:

Calmare® Pain Therapy’s MC5-A Technology

This technology creates a low energy electrical impulse which travels through the patient’s nerves delivering a “no-pain” signal to the brain. This process “tricks the brain” that the area of pain is normal and eventually results in prolonged pain relief. Calmare uses primarily “C Fibers” to transmit these random ‘no pain’ signals to calm the brain. It operates at 40 to 50 hz. and 16 different algorithms deliver five duel-channel signals to restart the brain and ultimately disrupt the chronic pain loop.

There is never a repeated cycle during a treatment, so there can be no accommodation by the brain (as with drugs or a self-administered, hand-held TENS unit). Here’s a very important point ─ pain relief using Calmare technology is of a significantly longer duration (often months, years or more) as opposed to using a TENS unit, where the pain returns soon after discontinuation of the unit.

Finally, Calmare Therapy is only administered by a medical professional who has years of clinical expertise delivering customized pain therapy.

TENS unit

This small, hand-held machine is self-administered so the placement of the pads is determined not by a medical professional, but at the best judgment of the patient or loved one self-administering the treatment at home. This machine stimulates A-beta sensory nerves thereby blocking transmission at the spinal cord. The machine operates at 80-100 hz. It is a single signal using a dual channel. Therefore, pain relief is of short duration. Treatment is performed on the pain site for the purpose of relaxation, pain relief, exercise or pumping fluid through the area. Most importantly, the machine has been designed with the goal of temporarily suspending pain.

RSD and CRPS Patients

The main challenge in treating RSD/CPRS is the complicated change in the nervous system which can be traced to changes in the receptors in the brain. As a result, therapy to resolve this kind of pain must reach the brain. The use of electricity for the management of pain is not unique to Calmare. In fact, many RSD/CRPS sufferers have probably already tried traditional TENS therapy.

But let me be clear ─ Calmare Therapy does not function like a TENS unit. Injury or other noxious stimulus in the body creates pain chemicals. These chemicals, in turn, are converted into electrical impulses by your nerves which are transmitted to the brain and INTERPRETED by the brain. When physicians use Calmare Therapy, they “control” the electrical impulses that the brain is receiving. By manipulating the input into the brain, they “convince” the brain that the area of the body where pain was present is now normal. We know that the brain can be “taught.” In medicine, we refer to those changes as neuroplasticity and there are many resources of interesting reading on that topic.

I certainly admit that this information is a lot to take in for non-medical readers. Nonetheless, I hope this helps in recognizing the key differences between the two devices. If you have more questions about anything related to Calmare Pain Therapy Treatment, please feel free to contact me. I talk with people every day about this revolutionary chronic pain solution and love every minute of it!

“RSD Gina” discovers Calmare Therapy available in her own backyard

June 2012
Gina, or “RSD Gina” as she is known online, is a lovely and vivacious woman whose daily joy from just living was stolen by a long struggle with reflex sympathetic dystrophy (RSD). Through her research for a drug-free solution to her chronic pain, Gina heard very positive feedback from other people living with RSD who discovered Calmare Pain Therapy Treatment. Then she discovered that one of seven certified providers was located in close-to-home in nearby Bergen County, New Jersey. She contacted Dr. Michael Cooney, program director, and was eventually cleared to begin treatment. Here, “RSD Gina” shares her story.

Due to the severity of Gina’s RSD, she will be coming in for a booster treatment. We hope to share her follow-up experience with you in the near future.