Category Archives: Radiating pain

Our war on RSD continues (thumbs up)

April 30, 2013

We’re delighted to report not one –but two–positive outcomes in the works with two RSD patients who began treatment last week. They’ve given us permission to share their stories as a vehicle for helping others who may read this (thank you both!).

Let’s begin with Deena from Pennsylvania –

Deena_PA_4.2013

Deena is shown here with the Calmare machine (April 2013).

In 2008, Deena fell on a wet tile floor and experienced hyperextention of the knee with a grade 2 tear of the medial collateral ligament (MCL). A year after her injury, she was diagnosed with reflex sympathetic dystrophy (RSD).  Treatment efforts for the past three years have consisted of physical therapy, nerve blocks and painkilling drugs such as Gabapentin and Tramadol, with no positive results.

Unable to walk without pain on the right side from the buttock to her foot, Deena has not been able to work or be fully engaged in day-to-day life.

Living in central PA, Deena felt isolated with her chronic pain, but through Facebook, she discovered other people who were also living with RSD.  Over time, she read about several positive experiences with Calmare scrambler therapy, she called the national headquarters for more information she was referred to Dr. Michael Cooney in New Jersey, who has treated many RSD / CRPS/ Fibromyalgia patients.

When she arrived at Calmare Therapy NJ last week, her lower extremity pain level was severe, 10 / 10. After five treatments, her pain has been reduced to a three  at night only at the original pain site (knee). The rest of her lower extremity pain is gone. Her mobility is vastly improved — she has no more limping or pain when walking and has overcome the allodynia (pain when touched).

Deena is finishing up her therapy this week and we look forward to her video depicting her experience with Calmare. Deena–it’s been a pleasure having you here in New Jersey and we are excited to hear about how your life is about to change once you return to PA. Stay in touch!

Chronic pain sufferers find valuable support from online chat groups

March 20, 2013

chat roomBy Dr. Michael J. Cooney

A colleague shared this article supporting online chat rooms for people living with chronic pain.  For those of us at Calmare Therapy NJ, this is not news. Many of our patients are enthusiastic users of Facebook groups, Twitter and other sites where people living with neuropathy or specific medical conditions can interact and share support. We often join in relevant discussions as well from a healthcare provider perspective.

The caveat, of course, is when non-medical professionals share healthcare information that is one-side on simply incorrect. We have had more than a few patients contact us with mis-information about Calmare Therapy, in fact.

Nonetheless,  my team and I actively join in on some of these online discussion groups because we can often offer clinical information on scrambler therapy and answer simple questions to help patients determine if this therapy (or another) might help minimize the cause of their pain.

My suggestion? Search for some online support groups and read the posts for a while to see if the tone and quality of information suits your needs. If you choose to jump in and ask a question or share your experience, you can maintain your privacy by posting under a username that protects you.

Nearly all the chronic pain support groups have chat rooms. Here are a few groups that we participate in below. If any of our readers would like to share additional recommendations, please do so!

Here to Help – RSD

Surviving Chronic Pain

DailyStrength.org (sign-up required)

rsdcrpsdoesntownme.com

Dr. Cooney takes your questions live on “RSD and You” today!

rsdnad youI am honored to be a guest on Joseph Aquilino’s popular “RSD and You” BlogTalk Radio program today at 3 p.m. eastern time.  It’s a relaxed program format where Joseph and I talk about Calmare Pain Therapy Treatment (he is also a patient with another doctor) and then we open up the phone lines for caller questions.

The call-in number is (310) 982-4253 and to listen live just click http://www.blogtalkradio.com/joeygiggles/2013/02/15/rsd-and-you-show .

If you’d like to join us on chat during the show, you’ll need to first register for the main site at http://blogtalkradio.com/.

If you have questions about scrambler therapy, please feel free to call in. There’s no need to identify yourself if you prefer not to.  Calmare patients are also encouraged to call and share their stories! See you at 3 pm!

Calmare Therapy to be featured on “Aches and Gains” Feb. 16

facebookFebruary 12, 2013

It was my pleasure to be interviewed by Dr. Paul Christo, one of the nation’s foremost experts on pain management. He hosts the only radio program devoted exclusively to chronic pain issues, “Aches and Gains,” broadcast on WBAL Radio 1090 AM. I’m delighted to say he willdr. christo be devoting the Feb. 16  program (airing at 8 p.m. Eastern) exclusively to Calmare Therapy. The episode will also include an interview with a Calmare patient who had very positive results from the treatment.

If you aren’t able to access the show from your viewing area, we’ll post the podcast here after the air date. This particular program means a lot to me because of Dr. Christo’s reputation in the field of pain management and his willingness to feature a newer treatment for pain that is drug-free, pain-free and without side effects. But this is only the beginning. This year we have plans to knock on the doors of the most important health and wellness media outlets to tell them about Calmare and how it can help so many people suffering every day with many types of chronic pain. This is only the beginning.

Kenley’s RSD story and Calmare treatment

Kenley

Click to view Kenley’s story.

February 8, 2013

I mentioned a few weeks ago about Kenley arriving here in New Jersey from her home in West Virginia wheelchair-bound as a result of her lower extremity RSD. She was also living with severe pain hovering in the 8 -10 pain scale range.

While she was with us for 11 treatments, she charmed us all and brought tears to our eyes when she pushed her own wheelchair out of the office after treatment number 7.

Kenley will require occasional booster treatments due to the severity of her condition.  Our goal is for her to be able to extend the length of time between treatments longer and longer.

This brave and inspiring young woman has generously shared her emotional story with us by video and we are most appreciative to her for telling her personal story. She left a big impression on all of us.

Kenley prepares to leave NJ–wheelchair free

January 17, 2013

no wheelchair imageSince we started providing Calmare Therapy, we have seen some remarkable patient outcomes that we will never forget. During the past two weeks here in New Jersey, our patient Kenley, from West Virginia, has experienced a tremendous outcome that we would like to share─

PATIENT HISTORY

She started treatment with us Monday, January 7. Kenley is a smart and kind 24-year-old who has been wheelchair-bound with RSD from her left knee to her foot for the past two years. Her dream is to overcome the RSD pain and be able to return to college.

CALMARE PAIN THERAPY – TREATMENTS 1 – 8

When she arrived, her pain level was 8-10. After her third treatment, she left with a pain level reduced to a 2. It increased that evening but each might her pain decrease lasted for a longer span of time. Yesterday, we completed treatment number eight and she walked out of the office reporting a 0 pain level for the first time. Best of all, she did not use her wheelchair when she left (which brought tears to my front office staff).  Kenley also said,  “I have been wearing loose slippers for so long I had forgotten what it’s like to wear real shoes–I love it!”

TODAY – TREATMENT 9

When she arrived this morning, Kenley was walking without the wheelchair, although taking tentative steps. She reported some overnight muscle soreness which I attribute to using her legs independently again for the first time in two years (there is “good” pain sometimes). Hopefully, Kenley can videotape her experience and share it personally with you all. She has an inspiring story to tell and we are honored to be part of it.

Dr. Michael Cooney

Calmare Therapy now offered at all four military branches

military-logo-header1After a modest testing of Calmare Therapy in a few military hospitals just a few years ago, the U.S. Military has now expanded this FDA-cleared neuropathic scrambler therapy solution to all four military branches. It has proved valuable as a drug-free, cost-effective, pain-free treatment for several types of chronic pain. While these outlets do not serve civilians, it is satisfying to know that our wounded soldiers now have access to this solution for post surgical pain, phantom limb syndrome, diabetic neuropathy and other chronic diseases, back injury, neck pain, lower limb neuropathy and other neuropathic conditions.

LIST OF U.S. MILITARY BASES / HOSPITALS OFFERING CALMARE THERAPY (2013)

VA HOSPITALS

Veterans Affairs Medical Center
Jamaica Plain, MA 02130

Hunter Holmes McGuire VA Medical Center
Richmond, VA 23249

ARMY

San Antonio Military Medical Center
(formerly Brooke Army)
Fort Sam Houston, TX 78234

AIR FORCE

Andrews Air Force Base
Andrews Air Force Base, MD 20762-6421

NAVY

Naval Medical Center Portsmouth
Portsmouth, VA 23708-2111

Naval Medical Center San Diego
San Diego, CA 92134-5000

Naval Medical Center Bethesda
Bethesda, MD 20889

Naval Hospital Camp Lejeune
Camp Lejeune, NC 28547-0100

Naval Hospital Pensacola
Pensacola, FL 32512-0001

Naval Hospital Bremerton
Bremerton, WA 98312-1898

Naval Hospital Jacksonville 
Jacksonville, FL 32214-5000

Naval Hospital Camp Pendleton
Camp Pendleton, CA 92055-5008

U.S. Naval Hospital Okinawa
Chatan-cho, Okinawa 904-0103

All a teen with RSD wants for Christmas is Calmare Therapy…

One of our younger patient’s mothers posted this today, making us feel sad and hopeful at the same time. They are coming in for booster treatments 18 months after her first round of Calmare Therapy in early 2011.

“Today I am thankful for my daughter. She is not the typical teen girl. She has lived with a monster (RSD) in her body since she was 9 and keeps pushing through. For the past four Christmases she has only wanted things for others.

This year she only …wants her Calmare Therapy for Christmas. No iPod, cell phone, clothing or jewelry….just less pain. She is wise beyond her years. She lives with 24/7 pain that only women who have had childbirth can understand, yet worse than that. I don’t know how many women would be able to dance through that pain and exercise or even get out of bed but she does it, every single day, and I could not be more proud!”

Insurance coverage for scrambler therapy is on the upswing

When it comes to convincing government and private medical insurance to cover newer medical treatments, it can feel like climbing a mountain. At night. With no shoes. In the pouring rain.

But, we’re happy to begin to see some light at the end of the tunnel. At last, health insurers are recognizing the cost benefit and effectiveness of Calmare’s scrambler therapy in comparison to endless medications, expensive and invasive chronic pain treatments such as Ketamine therapy and spinal chord stimulators (SCS).

 Here is what we know or have been advised to date:

 Worker’s Comp:

The following states are covering scrambler therapy:

New York

Connecticut

Rhode Island

Wyoming

Private Insurance:

*There have been sporadic reimbursements for indications including CIPN, RSD, Herpes and CRPS from the following private health insurers who have approved and paid for at least one patient of treatment for Scrambler Therapy: 

United  

Aetna  

Chartis 

Beacon Mutual  

BCBS UT

Cigna   

Zurich

Liberty Mutual

GHI

BCBS-NV

Anthea

CorVel

Empire BCBS

The Empire Plan 

 *Patients have reported the highest percentage of success when they appeal an initial denial of coverage. 

Additionally, patients living in New York and Wyoming with private insurance have reported the highest percentage of coverage in the U.S., to date.

Without appeals or submittal of claims for coverage, the insurance company’s Medical Directors see no demand from providers for the new technology and therefore have little motivation to establish coverage.

 CPT Code for Scrambler Therapy

The AMA released the new CPT code (0278T) on January 1, 2012.   This code is now used by all Scrambler therapy sites for billing/reimbursement claims.

If you live in a state where Worker’s Comp offers coverage and would like to pursue Calmare Therapy:

1) Schedule a consultation with a certified Calmare provider to determine if your medical condition is appropriate for Calmare Therapy. Bring along your medical records and a history of other chronic pain treatments you have undergone.

2) IF your doctor confirms Calmare is appropriate for your medical condition, contact your Worker’s Comp representative to obtain “pre-certification” before beginning treatment.

There is activity, we are getting there

Slowly but surely, insurers are beginning to see that scrambler therapy is a cost-effective treatment to help people minimize or eliminate chronic pain which is preventing them from working and enjoying the high quality of life they deserve. It’s proven and remarkably inexpensive in comparison to prescription drugs, Ketamine therapy, spinal cord stimulators (SCS) and other invasive and painful treatments.

But patients and their loved ones must put up a fight. What does this mean? According to patients we have spoken with who received reimbursement for Calmare, they did not accept the bevy of “Denial of Coverage” form letters. They wrote their own letters, appealed, appealed and appealed until someone listened.

As a Calmare provider, we will do anything we can to help you win the coverage you deserve. We have staff that interacts with insurance companies and Worker’s Comp personnel 40 hours a week. We are fighting the same battle, right beside you.

 

Ask your questions about Calmare Therapy directly to Dr. Cooney today!

 Dr. Michael Cooney will be a guest onRSD and You” hosted by Joseph Aquilino today from 3 to 4 p.m. eastern time.  Joey hosts a friendly and informal program centered around helpful information related to people living with reflex sympathetic dystrophy (RSD), CRPS and other “silent” types of chronic pain.

Details:

Call in to talk to Dr. Cooney at (310) 982-4253.