Science teacher and uncle of chronic pain patient talks about Calmare Therapy

camare foot image with leadsSomeone was kind enough to forward this post they saw on the Internet that mentions me.   I know who wrote it but I am happy to respect he and his family’s privacy. I found his methodology for discovering a drug-free solution for his niece’s pain very forthright and objective. Hope you don’t mind me sharing his point-of-view:

I am a science teacher and got involved in researching options when I heard that my niece was going through this awful pain and was on track to get a spinal cord stimulator.  Since I am very good at researching, I dove in for a few months and started looking for alternatives. Read about ketamin (looked risky), different kinds of drugs (side effects, and don’t address the underlying issue), saw the long term studies on spinal cord stims (the only randomized, controlled study was not so good long term, and it has definite risks for the surgery to introduce new pain sites), and a few others. I saw someone mention Calmare scrambler treatment a few times and decided to look into it. 

Personally, I like going to the controlled, scientific studies that are published in recognized pain journals, especially the Randomized Controlled Tests (RCT’s) that are the gold standard for research. The ones I found for Calmare have excellent results, and a large scale one is due out soon. I also saw that Mayo Clinic and U of Wisconsin Cancer center is using and doing studies with Calmare as well.

I found a radio talk show program “Aches and Gains”, by Johns Hopkins Pain Specialist Paul J. Christo, discussing it (February 16, 2013), and saw several videos with patients who it had been successful for. I started researching the various practitioners to see who had been having a lot of experience with CRPS and choose Dr. Cooney. He was the one I found the most CRPS info for (and he turned out to be wonderful to work with). Anyway, after all of that, I passed on the info to my sister and they decided to go for it. 

As for the TENS being the same/similar, that is not the case. The big differences are in the amount of current being used, and the types of neurons being used to transmit the signal. Calmare just received a patent approval, which required that it was different than a TENS unit, and worked in a different way. I just googled it (patent no. 8,380,317) and it said that it sends the “no pain” signal on the surface C fiber nerve receptors instead of interrupting pain signals through the A-beta fibers like the TENS does. (sorry, the biology teacher coming out….) 

The gist is that TENS intercepts the pain signal, but I believe that when you are not using it, the pain returns (but I don’t have experience with it personally). However, the Calmare signal is providing “no pain” data to the brain using the pathway from the original injury. My hypothesis (this is from other research that I’ve done) is that this gives the brain a chance to realize that there is no tissue damage going on, and therefore doesn’t need to assign pain to it. This then gives the brain a chance to reset/relearn the normal no pain state. 

Anyway, the bottom line is that Dr. Cooney’s Calmare machine brought my niece’s level 8 pain (with meds) down to a 0, and now she can walk normally. Her foot has some muscle and tendon aches because they are being used again, but this is also improving with use.

Again, I recommend that people with crps/rsd look into, talk to a Calmare doctor and decide for themselves.

3 responses to “Science teacher and uncle of chronic pain patient talks about Calmare Therapy

  1. Reblogged this on A CRPS angels world and commented:
    Hey everyone! This is the treatment that I am trying to raise $$ for! It is the Calmare therapy, by Dr. Cooney in New Jersey.
    After reading this particular post, it makes me want it even more!! I really think it will give me my quality of life back! My pain levels are consistently an 8-10 out of 10, if I had to “rate” it. I can’t work, and have no social life. I’m 3 months shy of being 26… I was 24 when I was diagnosed…
    I’m watching people who I’ve grown up with, getting married,having kids, doing great in their careers. And I’m here, in my house, seeing how many movies i can watch on Netflix in a week. Alone.
    Those of you with CRPS, please check this out and see if you think it would work for you too!

    Thank you for coming by!
    Hope all is well,
    Heather Lynn

    • I totally understand. I have been living this nightmare for almost 14 years. I hope I can get to have this done

      • Thanks for your message and we are sorry to learn you have lived with pain for so many years. The important thing is that you are still fighting. Please feel free to call us to talk further. Wishing you all the best, truly. Calmare Therapy NJ

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s